I’ve been a sibling carer for my non-verbal autistic and epileptic twin brother my entire life. Yet, I only labelled myself a ‘carer’ at the age of 23, just two years ago. I found out I was a carer in the midst of the pandemic, a time where like many, I was riddled with fear … Continued
‘My sister, Katy’, the three most common words which come out of my mouth everyday. Like any little sister, I absolutely idolised my big sister growing up. I always knew that she was different but I didn’t fully grasp that being ‘different’ wasn’t really accepted by society. I always saw my sister as the most … Continued
A sibling relationship is one of the most unique familial relationships out there. It usually outlives any other kind of familial relationship, meaning the impact it can have in shaping an individual’s life can be huge. When you add disability to this, the relationship becomes even more formative, for both parties. I grew up with … Continued
Once I had a sister. Her name was Alison and she was twenty-one months younger than me, the middle child of our parents. We shared the same straight brown hair and green eyes, different from our younger brother with his blue eyes and blonde hair. Alison and I were born uneventfully at home. In the … Continued
I was 6 years old and my sister, Sophie, was nearly 5 years old, when Kathryn was born. Kathryn was a really easy baby, but when it came to her two year check – things weren’t quite right. Physically she was fine, but she wasn’t meeting milestones mentally and didn’t have any language. That has … Continued
I am the youngest of four children to two loving and amazing parents. Two of my siblings have severe learning disabilities and epilepsy. My sister, Mira, who is 45, and my twin brother, Prasad, who is 38. Their disabilities were caused by medical failures at birth. It has been an emotional roller coaster being part … Continued
I’m 61, and my brother, Frazer, has a learning disability and epilepsy. He is 6 years younger than me, so I have always looked out for him. At the moment, his medication seems to be controlling things well, but we review his treatment regularly with his doctors. I feel like I have been on an … Continued
After the sudden death of a mother, the elderly father reluctantly turned to his son and asked if carers would possibly help with his daughter. A lady who lives with a learning disability, cerebral palsy, epilepsy, anxiety and mobility issues. His son had spent the past 30 years working within Adult Social Care, to understand … Continued