A sibling relationship is one of the most unique familial relationships out there. It usually outlives any other kind of familial relationship, meaning the impact it can have in shaping an individual’s life can be huge. When you add disability to this, the relationship becomes even more formative, for both parties. I grew up with … Continued
My employer was supportive when I told them I was a carer and, given that my team had all been working remotely from home anyway due to the pandemic, there were no work issues with me working from my mum’s house. I was able to flex my working hours to suit me, so that I … Continued
“A sweet tale of sibling love, told without sentimentality” Summer BrotherBy Jaap Robben, translated from the Dutch by David Doherty (2021); World EditionsReview by Pam Foley, adult sibling. Teenager Brian comes from a dysfunctional family; his parents are divorced and he lives with his conniving father in a trailer home, located in a remote Dutch … Continued
My brother, Mark, has periventricular leukomalacia which is a lifelong disability caused by damage to his brain around the time of his birth. This has impacted him physically, cognitively and made him partially sighted. He has always lived in boarding schools or supported living due to the level of his needs, including challenging behaviour. Mark … Continued
My youngest brother Reuben, who has Down’s Syndrome, suffered a breakdown 4 years ago. It was a form of regression that locked him into himself. After two years of moving between my parents and partner´s homes, as we were trying to get him better, he moved into a care home in Dorset, UK. Then the … Continued
Written by Louise Walters, adult sibling to brother who has autism We are going to the farm today and we are going to have a picnic. You watch me write the words on your white board. You jump up and start pacing the minute I put down the pen. You are ready to leave now. … Continued
Growing up as the middle sibling to two brothers with profound and multiple learning disabilities has made me the person I am today. Being tuned in to non-verbal brothers taught me to live mindfully well before anyone knew what that might mean. I am aware of the environment around me, changes in sound and light, … Continued
Above: Joan and her sister, Irene Sibling Joan Corrigan shares her experiences in this powerful two-part blog ‘Accountability’. We know that many siblings will relate to Joan, when she says: “The powerlessness I feel is the worst, but not for me, for my sister. I feel this strong compulsion to protect her, given my skills … Continued
Around eighteen months ago, our family were informed that my brother D’s appointee, the manager of the project where he lives within a supported living community, was retiring. We were asked whether we as a family would like to take over the appointeeship, or whether we wanted his local council to step in. We had … Continued
Conversations with Carers explores the lived experience of paid and unpaid carers through a series of podcasts and articles, which have also inspired 5 short dance films performed by disabled and non-disabled artists, some of who are also carers. Conversations with Carers is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported … Continued