I have an incredibly unique family as both my brother and sister have a degenerative disease of the nervous system. My Mum is in the last stages of Multiple Sclerosis (MS). So from the get-go I was in a world of disability, experiencing the good, the bad and the down right ugly!!! The advice I … Continued
My twin severely autistic brothers were institutionalised at the age of 7. I was 6 and our younger brother was 5 at the time. This was in 1962. I do not remember our parents explaining to us what was happening, nor why our family was being broken up. I remember that my twin brothers were … Continued
I am the youngest of four children to two loving and amazing parents. Two of my siblings have severe learning disabilities and epilepsy. My sister, Mira, who is 45, and my twin brother, Prasad, who is 38. Their disabilities were caused by medical failures at birth. It has been an emotional roller coaster being part … Continued
Join us in celebrating National Siblings Day on 10th April – a global awareness day recognising brothers and sisters! This year our theme is #SiblingStrengths and we spoke to three brilliant siblings who told us more about theirs. What are your #SiblingStrengths? What strengths do you admire in other siblings? Be part of the conversation … Continued
Living through the pandemic coronacoaster has been even more challenging for those of us who have been shielding to protect clinically vulnerable siblings. My brother Dan has Profound and Multiple Learning Disabilities due to a rare genetic condition called ATRX. Our younger brother Sam who had the same condition passed away suddenly from sepsis … Continued