Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. The work is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England. Episode 3: The informal Carer Photo credit: Conversations with Carers, produced … Continued
A well-meaning HR Manager once told me that she understood the difficulties I was having juggling issues with my brother’s care and a full-time job because she was a working parent and she too had the juggle childcare and work. I responded (perhaps slightly unfairly on reflection) by pointing out that as a parent she’d … Continued
I have an incredibly unique family as both my brother and sister have a degenerative disease of the nervous system. My Mum is in the last stages of Multiple Sclerosis (MS). So from the get-go I was in a world of disability, experiencing the good, the bad and the down right ugly!!! The advice I … Continued
My twin severely autistic brothers were institutionalised at the age of 7. I was 6 and our younger brother was 5 at the time. This was in 1962. I do not remember our parents explaining to us what was happening, nor why our family was being broken up. I remember that my twin brothers were … Continued
I was 6 years old and my sister, Sophie, was nearly 5 years old, when Kathryn was born. Kathryn was a really easy baby, but when it came to her two year check – things weren’t quite right. Physically she was fine, but she wasn’t meeting milestones mentally and didn’t have any language. That has … Continued
When people hear I have an autistic sibling, they always seem to jump straight to an apology… like I should feel sad that my brother has autism. Personally, I have never understood this. I love my brother more than life itself and he is the greatest person in my life. It’s hard to say whether … Continued
I am the youngest of four children to two loving and amazing parents. Two of my siblings have severe learning disabilities and epilepsy. My sister, Mira, who is 45, and my twin brother, Prasad, who is 38. Their disabilities were caused by medical failures at birth. It has been an emotional roller coaster being part … Continued
Shamini entered Poetry for Good, a national competition that ran in the Spring of 2021. Her piece ‘Risk Assessment: High’ was highly commended in the spoken word category. Many siblings will relate to this powerful and articulate poem, that highlights the unseen work of sibling carers during the pandemic. “I entered this competition because I … Continued
My sister is only one year older than me. When I was born, in spite of a very difficult birth and a spell at Great Ormond Street as a newborn, she hadn’t yet been diagnosed with any disability. Everyone thought she was just slower at crawling and moving than other babies. The story goes that … Continued
I remember the night my brother was born – I was two and a half and it was probably the first time I’d been away from my parents. I was put to bed at our neighbour’s house in a big double bed. I was wary of the size of the bed and the sheets felt … Continued