I want to be more involved in meetings about my brother
Most siblings become experts about stuff to do with their brother or sister’s medical needs or their behaviour. They often know how to be advocates for their disabled brothers and sisters though their experience of speaking up for them and helping them communicate. Some siblings want to be involved in meetings about their brother or sister’s needs and this is a positive thing. Your views can be really helpful when decisions are being made about your brother or sister’s care or support.
Some of the ways you can get involved in meetings
1
Ask your parent to tell you more about the meetings that are held about your brother or sister and ask if you can go to one of these.
2
If part of a meeting has to be private or your brother or sister does not want you to be there, ask your parent to give you a summary of the meeting and explain the main things that have been decided.
3
If you are not able to go to the meeting write your views down for your parent to read out at the meeting.
Whenever there is an appointment with my sister's consultant mum asks me to write down any questions I have and she asks them for me.
More about the future
Many siblings wonder about the future. They want to be able to lead their own lives and also want their brothers and sisters to have good lives too.